[1995-04-17] 北大继续求助的信

http://www.bio.net/bionet/mm/diagnost/1995-April/000093.html

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From: caiqq at mccux0.mech.pku.edu.cn (Cai Quanqing)
Newsgroups: sci.med,sci.med.dentistry,sci.med.diseases.cancer,sci.med.immunology,sci.med.informatics,sci.med.nursing,sci.med.nutrition,sci.med.occupational,sci.med.pharmacy,sci.med.physics,sci.med.psychobiology,sci.med.radiology,sci.med.telemedicine,sci.med.transcription,sci.med.vision
Subject: Infor About Zhu Ling's illness:from her freinds
Date: 19 Apr 1995 15:15:06 GMT
Organization: Peking Universary,China
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Hi :
	We cannot believe so many mails we have gotten. Thank
you very much for your generous help. Now we are busy in
translating  them to Chinese and send them to PUMC(Peking
Union Medical College) hospital. We are sorry that  we can
not send mail back one by one. The following messages try to
answer some common questions and tell you some new
information.
	1. The doctors still don't believe Zhu Ling's illness is
heavy metal poison or Lyme disease.
	2. Most  of the doctors think the illness would be
Guillan-Barre syndrome. Zhu Ling has been  in coma since
Mar 15, The CSF was normal in Mar 12 and Mar 22, but
abnormal in April 12. The doctors in PUMC cannot explain
that.
	3. We are trying to get the data that you want to know.
We will send them  back as soon as  we get the data.
	4. We believe that using tele-medicine conference system
to diagnose will be helpful to Zhu Ling . If you want to get any
more information or give more help (include financial support),
You can contact Dr. John W. Aldis, His E-mail address is:
	jwaldis at ix.netcom.com
	5. If you want to  contact with us,
You can fax to Ms. Bei Lu Ying ( 86-10-8502728),
You can also phone her ( 86-10-8502117 )at
Greenwich Time 00:00-03:30 and 06:00-09:30.
	6. Our address is:
	32# Room 134 Peking University, Beijing, China
	PostCode: 100871
	You can send  package or letter to Mr. Liu Li.

Thank you very much
							Zhu Ling's friends
							Peking University
							April 17, 1995

[1995-04-10] CAI Quanqing — 1995年4月发出的互联网求助信

原文最早发到何处已经不可考证，现在的拷贝是从bio.net上取得的。

无数的热心人为帮助朱令转发这封邮件，下面这个只是其中之一。

URGENT, HELP NEEDED!

William wjia at unixg.ubc.ca
Fri Apr 21 03:26:30 EST 1995

For all, please read and forward to as many people as possible. This
person desperately needs help. The more this circulates, the better
chance that someone who knows what to do will be found. Thanks!

--

Hi,
        This is Peking University in China, a place those dreams of
freedom and democracy. However, a young, 21-year old student
has become very sick and is dying. The illness is very rare. Though
they have tried, doctors at the best hospitals in Beijing cannot cure
her; may do not even know what illness it is. So now we are asking
the world -- can somebody help us?
        Here is a description of the illness:
        The young woman -- her name is Zhu Ling -- is a student in
the chemistry department. On DEC. 5, 1994, Zhu Ling felt sick to
her stomach. Three days later, her hair began to fall out and within
two days she was completely bald. She entered the hospital, but
doctors could not discover the season for her illness. However,
after she was in the hospital for a month, she began to fell better
and her hair grew back. Zhu Ling went back to school in February,
but in March her legs began to ache severely, and she felt dizzy.
She entered XieHe Hospital - Chinese most famous hospital. In
early March and on March 15, her symptoms worsened. She Began
to facial paralysis, central muscle of eye's paralysis, self-
controlled respiration disappeared. So she was put on a respirator.
        The doctors did many tests for many diseases(include anti-
H2V, spinal cord puncture, NMR, immune system, chemical drug
intoxication ANA,ENA,DSONA,ZG and Lyme), but all were
negative, except for Lyme disease(ZGM(+)).
        The doctors now think that it might be acute disseminated
encephalomyelitis(ADEM) or lupus erythematosus(LE), but the
data from the tests do not support this conclusion.
        The doctors are now treating Zhu Ling with broad-spectrum
antibiotic of cephalosporin, anti-virus drug, hormone, immun-
oadjuvent, gamma globulin intravenous injection and have given
her plasma exchange(PE) of 10,000 CCs. But Zhu Ling has not
responded -- she reamers in a vegetative state, sustained by life
support.
        If anyone has heard of patients with similar symptoms -- or
have any ideas as to what this illness could be, please contact us.
We are Zhu Ling's friends and we are disparate to help her.
        This is the first time that Chinese try to find help from
Internet, please send back E-mail to us. We will send more crystal
description of her illness to you.

Thank you very much
                                               Peking University
                                               April 10th, 1995
======================================================================
  Please foreword this message to  your freinds if you think they can be
helpful. Thanks  in advance!

email: caiqq at mccux0.mech.pku.edu.cn